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Improving Health Outcomes for Autistic People

We are excited to be conducting a project to improve the knowledge and skills of health professionals and ensure all individuals with Autism have fair access to healthcare services. This will include primary health care, allied health care, oral health care and mental health care.


This project is provided by the Autism Association of WA and funded by the State Government through the Department of Communities.

What is the project about?

The project aims to: 

  • Build the capacity and health literacy of people with Autism and other complex communication needs, and 
  • Build the capacity of health professionals to deliver quality health services to Autistic people.  

Who can take part? 

We will be working with individuals with Autism, their families and caregivers, health professionals and peak bodies to co-develop resources, training and professional development packages, and new service delivery models. 

Participants must be:  

  • An individual with Autism, a family member or caregiver, or a health professional. 
  • Aged 16 years or older. 

Individuals can take part in a way that suits them, such as: 

  • Joining the co-design team. 
  • Completing online surveys or questionnaires. 
  • Sending a video or written submission. 
  • Participating in focus groups, workshops, or individual interviews. 

Register your interest here

The young adult male smiles while he talks to the group about his achievements that week.

Express your interest in an interview

We are seeking individuals with Autism, families, carers, and health professionals to share their experiences in accessing health care in WA by participating in an interview. Taking part will involve speaking to our Health project team to share your experiences, with your input helping us to improve healthcare services.

Please note that individuals must be 16 years of age or older to participate. 

The interview will involve:

  • An in-person or online interview of approximately one hour.
  • Questions about your experiences with healthcare services, such as seeking medical assistance and treatment or getting a diagnosis.
  • Questions about what worked well for you when accessing health care and what you think could be improved.
  • Audio recording and transcription, which you will be able to review.

Talk to us in a way that works for you:

  • Participation in these interviews is voluntary.
  • You can request a list of possible questions before your interview to help you prepare.
  • If you would rather not answer a question or questions, that is okay.
  • You can stop the interview at any time.
  • Your interview will be de-identified and you will remain anonymous.

Click the button below to express your interest, selecting “Participate in an individual interview” under “How would you like to take part?” (question 8). 

Register your interest here

iHOAP Interviews (Webpage)

Share your experience with us!

Perth Children’s Hospital Emergency Department

Good health care in hospitals and other healthcare services is not just about treating an illness. It is about making sure that patients are cared for and feel safe and confident in the quality of their care. Finding out about patients’ experiences can help hospitals and healthcare services to improve the care they provide. 

In collaboration with Perth Children’s Hospital, we are conducting a survey to better understand the experiences of children with Autism and their families who have attended the Emergency Department (ED) at Perth Children’s Hospital (PCH). 
 
The aims of the survey are: 

  • To find out the most effective ways for families to prepare for a trip to PCH ED and engage optimally with the services available. 
  • To better understand from parents what is working well or could be improved in the services provided to your child with Autism at Perth Children’s Hospital Emergency Department. 
  • To understand what ‘good care’ means to parents and patients with Autism and exactly what they experienced during their care in hospital. 
  • Find out what improvements could be made that will make a significant difference to patients with Autism and their families.

Click here to take the survey

 

Curtin University Oral Health Therapy Clinics

Express your interest

Over the past several years, we have been developing and providing training to staff within the Dental sector to help them better understand and support their patients with Autism. As a result, we are pleased to have an ongoing partnership with the Curtin University Oral Health Therapy Clinic. 

Through this partnership, students in their final year of Oral Health Therapy training will be running clinics specifically for individuals with Autism in the second half of 2024 and into 2025. We would like to offer you or your child the opportunity to attend one of these clinics – which will be supported by staff from the Autism Association of WA – at no cost to you.

These Oral Health Therapy Clinics are one-off sessions, but if ongoing appointments are required, these can be provided by Oral Health Therapy students during their usual dental clinic times.

Click the button below to complete the Expression of Interest form. If you have any questions about these Oral Health Therapy Clinics, please contact Health.Project@autism.org.au.

Express your interest here

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