Research participation at the Autism Association of Western Australia
Find out more about our current research projects and our dedication to creating best-practice Autism services.
The Autism Association of WA continues to engage in wide-ranging research, including projects funded through one of the Federal Government’s Cooperative Research Centres: Autism CRC. Autism CRC is the world’s first national cooperative research effort focused on Autism. The research takes a ‘whole life’ approach to Autism, with a focus on diagnosis, education and adult life.
Other research projects in which the Autism Association participates, are funded through the Department of Social Services (DSS) as part of the Child and Family Outcomes Strategy (CFOS). In addition, throughout the year, we may meet requests from PhD candidates also those from post-doctoral researchers by linking them to families who may be interested to participate in Autism research. Outlined are a range of research projects we are currently engaged in across Australia.
Publications:
- “The big wide world of school”– Supporting children on the autism spectrum to successfully transition to primary school: Perspectives from parents and early intervention professionals – published in the Scandinavian Journal of Child and Adolescent Psychiatry and Psychology
- A Critically Appraised Paper, published in the Australian Occupational Therapy Journal: A personal digital assistant intervention reduced job coaching support hours without reducing work performance among workers with Autism
- A Template for Countering Misinformation, – Evaluation of a template for countering misinformation—Real-world Autism treatment myth debunking. Published in PLOS One – a peer-reviewed open access scientific journal published by the Public Library of Science.
- Transition from Early Intervention Program to Primary School in Children with Autism Spectrum Disorder – published in the World Journal of Clinical Paediatrics
Long term research projects include:
Background: Individuals diagnosed with autism spectrum disorder (ASD) experience impairing challenges in social communication and interaction across multiple contexts. While social skills group training (SSGT) has shown moderate effects on various sociability outcomes in ASD, there is a need for (1) replication of effects in additional clinical and cultural contexts, (2) designs that employ active control groups, (3) calculation of health economic benefits, (4) identification of the optimal training duration, and (5) measurement of individual goals and quality of life outcomes.
Click here to download the Protocol of the randomized control trial.
Click here to view recent media article.
KONTAKT adolescents Pilot paper
I Met Someone Like Me! – KONTAKT Australia – Responder study
This research commenced in 2012, and aims to measure child and family outcomes of children with Autism who participate in the Association’s Autism Specific Long Day Care Program. Child outcomes have been investigated in relation to goal achievement, preparation for the first education setting and developmental profiles. Following analysis of the data from child and family assessments conducted over the past six years, preliminary results have shown positive outcomes for children and families who have participated in the Early Intervention Programs. The children showed statistically significant improvements in their expressive and receptive language skills, their social functioning and their fine and gross motor skills. In addition, a significant reduction in behaviours of concern was measured. Many parents reported being able to return to work, study or local community activities, confident their children were engaged in a safe, inclusive educational environment. The research will also report on the outcomes as reported by community childcare workers who participate in training to support children with Autism in their childcare programs.
Following further analysis of the data several articles will be submitted to well-established journals throughout the year.
Overview: the Association’s ASELCC in WA, in partnership with Curtin University, participated in a collaborative research project with the ASELCCs in Tasmania, South Australia and Queensland. The aim of this collaborative study was to identify staff knowledge, and use of therapy approaches by childcare and clinical staff working in a specialist early intervention setting, using a combined (rather than single) treatment approach. This will be published in the near future.
Overview: children with Autism have different responses to early intervention. This study, with Curtin University, focused on whether we can identify clinical and behavioural characteristics that predict the child’s development and responses to particular approaches. Identifying subgroups of children will assist in determining which intervention will be most suitable for each individual child.
This research will be implemented across our First Steps for Autism Early Intervention programs across 2016-2019
Overview: this project aims to match children with the intervention that will work best for their biological make-up. While we know that early intervention enhances developmental outcomes for children with Autism, it is hoped to find subgroups that will have distinct profiles in order to ensure targeted and therefore more effective early intervention. Study subjects have been recruited through all six Autism Specific Early Learning and Care Centres (ASELCCs) across Australia and other comparable sources, e.g., Autism Spectrum Australia (ASPECT) that provide ASD early intervention programs, in addition to the pre and post intervention data from the six ASELCCs.
For further information see: www.autismcrc.org.au/research-programs/diagnosis
Overview: the biobank will contain detailed biological information collected from over 1200 families where a member has Autism. This will allow for the first time, on an unprecedented scale, genetic discovery enabling an earlier and more accurate diagnosis. The Autism Association provides assistance to the project in the participant recruitment process.
For further information: www.autismcrc.org.au/research-programs/diagnosis
Overview: another project with which Curtin University and the Association’s ASELCC are involved, aims to evaluate transition to school outcomes for children with Autism who have received at least/around 12 months intensive support through the six ASELCCS (one in each state in Australia) prior to school entry. The purpose of the project is (1) To determine the individual child characteristics as well as family and intervention variables that are associated with successful transition to school for children with Autism; (2) to develop evidence based guidelines for practice to support positive transition to primary schooling.
For further information: www.autismcrc.org.au/research-programs/diagnosis
